Thursday, June 30, 2011

update...

BIH is officially back. click here to read about BIH

I misunderstood the condition I guess. (or no one explained it to me properly)

I had no idea that BIH could return.

I thought I'd lost weight. I was healthy. My blood pressure was perfect.
The swelling of my eye discs had gone. Fixed.

Not so :(

The Specialist I saw this morning says it's "disappointing" that it's returned with everything I've done,
but there's nothing I've done to cause it to come back and there's nothing I can do to "fix it"
(beside medication, of course. Or a Lumbar Puncture in bad cases to ease symptoms)
The fact that I stopped BP meds at the same time as the return of symptoms is purely coincidence.

So, I've increased my BIH medication for the next three weeks and then he'll re-evaluate.
(please keep praying he won't decide to do another LP)

I have "very narrow optic nerves" (skinny eyes, haha) which is very uncommon apparently
and makes me susceptible to BIH and other eye diseases later in life.
The Specialist warned me to be careful with my health (blood pressure, cholesterol etc) and
I assured him that I'd already had my scare and I will continue to be the picture of health :)

Things aren't dire. Everything is okay. I've been diagnosed. I'm being treated. I'm disappointed,
but I'm still 1000 times better off than I was 12 months ago. xx

4 Comments:

Blogger Amber Kids said...

Fingers crossed the upped medication does the trick Rach.

Sounds like Taylor needs to give you a teeny bit of her enlarged optic nerves to make yours the perfect size oxox

June 30, 2011 at 1:37 PM  
Blogger Lesley said...

Sorry you didn't get the news you were hoping for but onward and upward I know this will only make you stronger and more determined to get where you want to be.

Praying that he won't do another LP, they are vile :(

June 30, 2011 at 1:43 PM  
Blogger KatherineB said...

Ugh! Well that just plain sux! Sorry - had to be said. Thank goodness that you are a super strong woman who can conquer anything - speedbumps included. You won't need another LP (think positive) and if its medication that can fix it for you well be thankful there is a medication for it. You are strong, you are amazing and you are INSPIRATIONAL!!!! Cheers to being 1000 times better than 12 months ago!!! xx

June 30, 2011 at 3:38 PM  
Anonymous Anonymous said...

You're amazing and with what you've achieved over the past 12 months, I know you can overcome and work through any hurdle placed before you
Peta xo

June 30, 2011 at 9:17 PM  

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